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Introducing Narrative Practices in a Locked, Inpatient Psychiatric Unit By Lewis Mehl-Madrona, MD, PhD
Introduction I wanted to explore the possibility of incorporating narrative ideas into a conventional locked psychiatric unit in the southwestern United States. Narrative approaches emphasize a storied understanding of people’s behavior1 rather than a categorical understanding such as conventional diagnoses provide.2 It seemed a worthy challenge to start a group that would involve patients who mostly had multiple repeated involuntary admissions to construct new frameworks for understanding their experiences and their recovery. In a narrative approach, current and future behavior is understood as following logically from the plot of the stories in which the person lives.3 Such understanding facilitates the construction of alternate stories, which leads to different and more desirable outcomes. Howe wrote that no one belief system could reveal the entire truth.4 A story can capture multiple belief systems in ways that can lead to constructive behavior change. White stated that people experience problems because they are restrained in some way from taking a course that would ameliorate their distress. This is referred to as “negative explanation.”5 The population for which this group was designed was steeped in deterministic explanations of defective genes and chemical imbalances. Having alternate explanations that could empower them to make personal changes to prevent undesirable future outcomes could be helpful. O’Neill and Stockell opened the way for therapists to apply narrative methods to nonfamily groups.6 When people in their groups discovered that they could challenge the subjugating story about themselves as defective, however minimally, they begin to develop an alternative knowledge, or a reauthored account, of their lives. Standard approaches, particularly in the field of cognitive behavioral therapy and serious mental illness,7 typically do not make reference to such techniques or constructions of therapy. If psychotherapists incorporate notions of subjugation into our work, then, as Mullaly8 suggested, we can attempt to use transformational knowledge to change society from one that creates and perpetuates poverty, inequality, and humiliation to one more consistent with values of humanism and egalitarianism. Methods Setting The setting was a locked inpatient psychiatric unit in a hospital in the southwestern United States. The county funded the care of all patients (the majority) who were involuntarily admitted to the hospital on a petition for assessment as to whether they were dangerous to themselves or to others or were persistently and gravely disabled. Almost all patients were indigent and receiving public assistance in one form or another. I took over a group that had been a psychoeducational group provided by social workers. Because the average patient stayed 12 days (the median was six), each week would probably have to begin and end a whole sequence of groups, especially because the majority of patients were admitted on Friday, Saturday, or Sunday. The maximum size of the unit was 18 patients, and the sizes of groups ranged from 2 people to 14, with seemingly random fluctuations. The three locked units in the hospital were viewed as equivalent. Admissions were assigned to each unit in a manner that maintained equal census. Two psychiatrists were assigned to each unit. A fourth geriatric locked unit existed but did not contribute data to this project. Because patients were involuntarily admitted, the institution’s ethics board determined that they could not give consent for participation in research. Therefore, the only acceptable way to study this population was to build on a pre-existing quality-improvement project in which assessments were made at admission and discharge without patient identity. Although we could know to which unit patients were assigned, we could not know which patients attended the group and which did not. Therefore, we had to assess the impact of running the group on the aggregate outcome data for units as a whole rather than on individuals attending the group versus individuals not attending the group. This prevented the use of some statistical procedures and weakened power to detect an effect. Nevertheless, it would be significant to show that the replacement of a psychoeducational group by a narrative therapy group had an impact on aggregate outcomes for the unit as a whole, compared with the other two units that continued to offer the psychoeducational group. Design and Development of the Group I built on Vassallo’s design9 for a narrative group for the seriously mentally ill, which was an outpatient group meeting every two weeks with referred nonpsychotic patients. Unlike Vassalo’s design, however, this study included acutely psychotic patients as well as others in crisis, and the group met daily. This choice is supported by research indicating that such patients could do well with group therapy approaches.6,9,10-27 Yalom27 traced the bias against group work for psychotic individuals to the psychodynamic perspective in which the leader was largely silent, provoking anxiety among the members. I implemented the concept of Coupland et al28 that group facilitators should “suspend disbelief” about the utterances of psychotic people because they may have truly remarkable stories to tell. All utterances of members were respected and deemed worthy of consideration, regardless of how delusional or psychotic from conventional perspectives. I used Anthony’s model of recovery,29 in which people can improve without professional help and professionals do not necessarily hold the key to getting better. Rather, the people themselves do. This concept was introduced in the group because most patients had had repeat admissions and did not seem to be getting better despite episodic professional help. Anthony believed that a common denominator of recovery was the presence of people who believe in and stand by the person in need of recovery. The idea that they needed a community if they wanted to stop being readmitted to hospitals was introduced to the patients in the group. Anthony believed that people who have or are recovering from mental illness are sources of knowledge about the recovery process and that these people can be helpful to others who are recovering. This idea was conveyed to people in the groups and it was emphasized that they could be helpful to each other and could learn from and inspire one another, even after discharge. Previous groups on the unit had been psychoeducational groups7 in which people learned the importance of taking their medication. The group under study relied more on Reid’s interactional model,30 in which group members help each other. The group emphasized members’ actually recognizing that they had areas of competency. They could do that through observations of each others’ descriptions of stories about successes and could be asked to produce their own stories of successes that challenged the dominant story of their defectiveness. In keeping with Northern’s model,31 I emphasized an atmosphere of experimentation and flexibility. The group design aimed to challenge the usual group model in which people talked about their deficiencies, focusing instead on the stories they brought to the hospital about how they got there and on what stories they might prefer to tell (about how they avoided a situation in which they could have been admitted to the hospital). The variety of people present in the group was presented as representing a diversity of perspectives from which each person could learn. The group aimed to help people reconnect with their own knowledge and strengths.32 In keeping with White and Epston’s descriptions,1 the group was meant to be an environment to facilitate the generation of new life descriptions so that largely powerless people could feel some small sense of agency or control over their lives. The group was meant to communicate to its members White’s idea of problems developing an identity of their own, which then exerts influence on individuals, couples, families, and communities. The group was meant to introduce to this population White’s concept33 of externalizing and separating from the problem so that the degree of its influence over the person could decrease.34 The group aimed to help people separate themselves from problems and see problems as things that affect them, things against which they can take action, rather than seeing themselves as the problem.32 The leaders planned to provide as much structure as necessary to keep the group flowing and to prevent loss of attention, very different from the typical psychoanalytic group. The purposes for the group included the following:
The group was conducted by a social worker and a family physician/psychiatrist. It lasted one hour each day. Discussions about group content and process occurred only within the group at the time that issues emerged or in the final five to ten minutes of the group, with participants as active members of those discussions. All mental health technicians, activities therapists, nurses, and other physicians were invited to attend. Usually only one other person attended (besides the leaders), most commonly a mental health technician, and often because they were assigned to be within arm’s length of a patient attending the group. All patients on the unit were strongly encouraged to attend, including psychotic patients, patients in acute distress, and patients going through withdrawal. The group was conceived as a daily venture in introducing narrative concepts to the staff. Initially, all mental health technicians were going to be required to attend to learn narrative practices. The social work staff desired to attend, as did the activities therapists. In actuality, the mental health technicians did not attend, except when they were assigned to provide one-to-one staffing for a patient who did attend the group. Only one of the social workers regularly attended, along with intermittently both of the activities therapists, who then augmented the group by creating continuity from what was discussed in the group to what was done in their activity group. Typical Group Flow The group aimed to create a different experience from what the patients usually encountered in the hospital. (For examples of the patients’ experiences, please see sidebar: People’s Stories.) We began by asking people to tell the story of how they were admitted to the hospital. Almost everyone could relate to this idea. Some people told simple stories, such as “the police brought me here.” Occasionally the group could extend this further and find out what had led the police to bring them to the hospital. Some identified people in their lives who might have called the police. Others could identify situations that had arisen that resulted in the police being called. Others called the police themselves, saying that they were suicidal or were thinking of hurting someone else. Many came for drug- and alcohol-related problems, becoming depressed and sometimes suicidal in relation to alcohol use or becoming psychotic in relation to use of amphetamines, cocaine, or other drugs. Some people could identify defining moments in which they took the first drink or smoked crack cocaine or crystal methamphetamine. Next we asked people about other possible stories: What could have happened differently? We asked people to identify pivotal moments in which a different path could have been taken. This was harder, but many people could think of defining moments. What if another choice had been made at one of those defining moments? What could have been a different outcome? With some coaching, most people could relate to this. Examples included: “I could have called a friend instead of taking pills.” This took most of the first two group sessions of the week. We wanted to put forth the idea that there were alternatives to the usual path followed (many had multiple previous admissions). Most of these patients were not used to using their imagination to think of alternatives. To be asked to do so was novel for them. The third group session usually focused on having people tell a success story about themselves. The group searched for one time in participants’ lives when they did something of which they or others were proud. The group focused on a time when they could remember doing something well. An example of a story that emerged came from a woman with multiple admissions living on the nearby reservation who felt that she was so worthless that someone should kill her. She recounted with pride the first time she was asked to sing in a sweat-lodge ceremony and described the sense of worthiness she experienced from being recognized as capable of singing well and of knowing the appropriate songs to sing. The fourth group session of the week typically focused on making immediate postdischarge plans. The group members explored options and guided participants to develop a story about what would happen in the month after discharge in each of the various scenarios presented. One might consider this as a kind of anticipatory guidance. The fifth group session of the week typically focused on the preferred story--what story would members wish to tell the leaders if they ran into us one year later in a grocery store parking lot? What did they wish they would be able to tell others? Outcome Measure The outcome measure was the BASIS-32 (32-item Behavior and Symptom Identification Scale),35 a patient self-report rating scale of symptom and problem difficulty, used primarily to assess treatment outcomes. It was already being used on admission for all patients in the hospital and was repeated before discharge. Having a hospitalwide outcome measure in place was helpful. Improvement was ascertained by comparing scores at admission with scores at discharge. The five domains measured by the BASIS-32 are psychosis, daily living/role functioning skills, relation to self/others, impulsive addictive behavior; and depression.36 Multiple confirmations of acceptable reliability and validity for the BASIS-32 have been conducted. A recent representative field test at 27 treatment sites across the United States assessed a total of 2656 inpatients and 3222 outpatients. Test-retest and internal consistency reliability were acceptable. Tests of construct and discriminant validity supported the instrument’s ability to differentiate groups expected to differ in mental health status and its correlation with other measures of mental health.37 Results Demographics The mean age of patients responding to the quality-improvement scale for our hospital was 36, with 34% being female and 62% being white. Sixty-six percent had education beyond high school. The average length of stay was 12.4 days, with 72.2% involuntary admissions. The most frequent diagnosis was schizophrenia (27.2%), followed by depressive disorders (26.6%), bipolar disorder (22.4%), other psychotic disorders (6.6%), and substance-related disorders (6.6%). BASIS Scores The average change in patient-reported functioning on the BASIS-32 for all patients before the group began was 0.3; in patient-reported depression/anxiety, it was 0.5. The average change in psychiatric symptoms on the Brief Psychiatric Rating Scale was 5.1; on anxiety/depression rated symptoms, 1.8; and in overall functioning on the global assessment of functioning scale, 16.7. For the BASIS-32, on a standardized -4 to +4 scale for change from admission to discharge, where positive means improvement, the hospital as a whole showed a score of 1.0. The percent overall reporting satisfaction as excellent was 33.6%. Outcomes First I compared the unit’s BASIS-32 scores with those of the other two adult locked inpatient units. No statistically significant differences were found in BASIS-32 change scores for admission to discharge for each the four quarters (12 months) prior to the start of the intervention. The last quarter was a baseline-monitoring period in which I spoke to the staff about the intervention and did trainings and presentations but did not begin. Next, I compared changes in the total BASIS-32 scores for the whole hospital from admission to discharge for the quarter preceding the start of the group to the quarter during which the group was ongoing. The difference scores were normally distributed and met the required assumptions for a two-sample t-test with unequal variance. The mean discharge score for the hospital as a whole was 22.4 (SD, 8.4; 95% confidence interval [95 CI], 19.75-25.05) and for the unit was 18.4 (SD, 12.0; 95 CI, 13.92-22.88). The difference between discharge scores was -4.0. The comparison of discharge scores was not statistically significant (t = -1.566; p = 0.124), whereas the comparison of the admission to discharge differences reached borderline significance for two-tailed tests (p = 0.06) and was statistically significant for the one-tailed test (p < 0.05), which is justifiable if it is believed that participation could not make people worse. Finally, I compared the unit’s results with those of the other two units for the quarter in which the intervention was taking place (knowing that there had been no statistically significant differences between units for the previous four quarters; Table 1). My group had a mean overall improvement in BASIS-32 scores of 2.8 units, compared with 1.0 units for the other two units. The results were statistically significant at the p < 0.0001 level. Naturally these results must be interpreted with caution because there might have been other reasons why our unit performed better than the other three units. Because this study actually had only 34.7% power to detect a statistically significant difference, the obtained p values are more impressive than they would initially seem (using the sampsi [“sample size”] command of Stata version 8.2 [StataCorp, College Station, Texas]). Eighty percent power would have required 106 people for the baseline and the same number of responders during the time in which the group was taking place. Subject sample size could be further reduced by including only people who actually attended the group, though this was not our original research question, or through the use of matched pairs.
Discussion Throughout the three months of the group, people presented episodes in which they had challenged the prevailing story of them as defective and inferior. Virtually everyone could find a time when they had behaved differently from the expected story. People readily identified with telling the story of how they came to be in the hospital. Most could tell at least one different story that would have prevented their coming to the hospital. Many had stories that illustrated times when they were successful or doing well. Harder was the idea of making up a story that they would like to tell if we ran into each other on the street one year later. This idea of a preferred story was more difficult. It appeared that this population was not encouraged in general to use their imagination and to fantasize alternate possibilities to the life they were leading. It was hard for them to imagine that their lives could be anything but inferior. They believed that they would always be disabled, should adjust to this reality, accept their Social Security disability income, and settle into the life of the chronically mentally ill. This appeared to be a terribly lonely, isolated, unfulfilling life. It was no surprise that many of them resisted the adjustment to this life by running away from their group home or other placement, by refusing to take medication, and by otherwise resisting those who regulated their lives. In the group, we were able at times to validate the meaning and purpose behind their resistance and their efforts to overthrow their label even as the group talked about the ways in which that resistance had not been successful in keeping them out of the hospital and to explore other, more potentially successful stories. The idea of externalization was largely too difficult for group members to grasp over the course of one week, given their many years of involvement with the mental health system of learning and with a story of defectiveness. More than 70% of group patients had concomitant problems with substance misuse, and sometimes the group was able to talk about the use of substances as a means of reducing the misery, loneliness, and isolation of their conditions. They, like their physicians, were looking for the “magic bullet.” Many felt betrayed by conventional psychiatry’s promise of medications that would make them feel fine. They did not feel fine when taking medication. This led to a search for drugs that would work, including methamphetamine (the apparent drug of choice in our area of the Southwest), cocaine, marijuana, heroin, and alcohol. Group members were clear about the usefulness of these substances in either anesthetizing themselves or in giving them a brief respite of pleasure in the face of a life of pain. For so many of our patients, their lives were miserable, and prescription medications could not be expected to offset the problems of powerlessness, abuse, threat, homelessness, isolation, and the biases of class and poverty. We followed the ideas of the narrative model as much as possible in an effort to:
Though we hoped to teach skills to mental health technicians for interacting with patients, no evidence emerged that this had happened. It appeared that interaction with patients was not actually a cultural value of the hospital. Typically mental health technicians read magazines, did puzzles, read newspapers, or otherwise occupied themselves when assigned one-to-one with patients. When supervising patients in the day room, they typically used the television or put on movies. This did not change as a result of the group. The group leader found that he reported the most powerful effects, in that patients who had previously been puzzling to him began to emerge as more complete, complex people. In his previous role as inpatient psychiatrist, he had felt that his relationships with patients were mostly scripted by their expectations for how to behave with him and how he should behave with them. The group provided an opportunity for nonscripted behavior because many of the patients had other psychiatrists and had no need to cajole or influence him in any way. He found himself appreciating talents and resources for these patients much more than he had in his limited role as psychiatrist. Virtually no effects on nursing staff members or other physicians were found. Those patients who attended the group tended to come every day. They described the group as a welcome relief from the boredom of the unit. Some enjoyed hearing one another’s stories. We had no way to obtain follow-up data from people after discharge. One member commented that the group had helped people to see that they had a more normal side. Members felt easy and comfortable in the group. As a group member said, “There was no pressure and no judgment.” Most significant and rarely reported is how the group changed the leaders’ experience. We felt more meaning and purpose at work. Our work was often a meaningless experience because we spent most of the time documenting people’s histories with lengthy dictations and had little time to actually spend in dialogue with people except for the standardized questions that everyone had to be asked. The group provided a context from which to view the stories of patients’ lives and to hear success stories and stories that could never come to light within the context of conventional psychiatry. Each of us looked forward to the group as a break from our usual routine. So many of our patients, who were repeaters, had no services or resources in the community and had to be discharged to essentially nothing. Others were lost in the substance misuse story and came to the hospital to dry out or detox or just for a break from drug use. Others were homeless and had learned to come to the hospital and say they were suicidal when things got too hard on the street. Because 72% of the study population was in the hospital involuntarily, it represented the most severe of the seriously mentally ill population. The ability of this group to participate in narrative practices, even while coming off drugs or being psychotic, was amazing and was a testimony to the power of story in people’s lives. The group tried not to define people as “mentally ill” but rather as people whose stories had resulted in hospitalization. We asked the question of how their stories could change to avoid hospitalization. Group leaders tried to introduce the idea of the importance of other people and community--in essence, to have an audience to support the story one would prefer to live. We found that participation in the group for staff members encouraged them to “come down to earth” more. They found us having more direct and genuinely curious conversations with patients that were not couched in the usual power differential of staff versus patients. No one had to be at the group. People could leave at any moment. The criterion for staying was to want to stay. The staff members who did occasionally attend were amazed at the hidden richness of peoples’ lives. Participants did tell us how important it was to have staff (including physicians) who could listen and not discount the patient’s knowledge. They did not like physicians who claimed to know more about them than they did or who discounted the side effects that they experienced from medications. They wished more physicians and nurses would have attended the group to see them from a different vantage and to hear their stories. They complained about how little time the physicians actually spent with them and how little some of the physicians seemed to care. We were amazed at how naïve these patients were about psychosocial interventions of any kind. It appeared that they were mostly approached with case management and medications, and the idea of talking together and helping each other solve problems was largely ignored. Their attention span was short. Often, group leaders had to change topics every ten minutes on the first day of group (usually Monday) to keep people involved, but with increasing time in the group, attention spans increased. We did a few mindfulness exercises that could not be tolerated any more than five or ten minutes and seemed very strange to our participants, who nevertheless seemed to desperately need these techniques of stopping one’s thoughts and sitting calmly in the present. We suggest that further study is warranted with increased sample size to have adequate power to demonstrate a statistically significant effect. This study serves to introduce the topic and gives some guidelines for calculating sample size. We suggest a future study that includes measures of how the group affects staff and patients who attend, with the opportunity for follow-up after group members leave the hospital.
Acknowledgment Katharine O’Moore-Klopf of KOK Edit provided editorial assistance. References 1. Epston D, White M. Literate means to therapeutic ends. Adelaide, South Australia: Dulwich Centre Publications; 1989. 2. American Psychiatric Association. Diagnostic and statistical manual of mental disorders, 4th edition, text revision. Washington, DC: American Psychiatric Association; 2000. 3. Mehl-Madrona L. Narrative medicine: the use of history and story in the healing process. Rochester, VT: Inner Traditions; 2007. 4. Howe D. Modernity, post modernity and social work. Brit J Soc Work 1994;24:513-32. 5. White M. Negative explanation, restraint, and double description: a template for family therapy. In: M. White, 1986. Selected papers. Adelaide, South Australia: Dulwich Centre Publications; 1986. 6. O’Neil M, Stockwell G. Worthy of discussion; collaborative group therapy. Australian and New Zealand Journal of Family Therapy 1991;12(4):201-6. 7. Falloon IRH, Boyd JL, McGill CW. Family care of schizophrenia. New York, NY: Guilford Press; 1984. 8. Mullaly R. Structural social work: ideology, theory and practice. Toronto, Canada: McLelland & Stewart; 1993. 9. Vassallo T. Narrative group therapy with the seriously mentally ill: A case study. Australian and New Zealand Journal of Family Therapy 1998 Mar;19(1):228-34. 10. Addington J, el-Guebaly N. Group treatment for substance abuse in schizophrenia. Can J Psychiatry 1998 Oct;43(8):843-5. 11. Albiston DJ, Francey SM, Harrigan SM. Group programmes for recovery from early psychosis. Br J Psychiatry Suppl 1998;172(33):117-21. 12. Andres K, Pfammatter M, Garst F, Teschner C, Brenner HD. Effects of a coping-orientated group therapy for schizophrenia and schizoaffective patients: a pilot study. Acta Psychiatr Scand 2000 Apr;101(4):318-22. 13. Buccheri R, Trygstad L, Kanas N, Waldron B, Dowling G. Auditory hallucinations in schizophrenia. Group experience in examining symptom management and behavioral strategies. 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Washington, DC: American Psychiatric Association; 1996. 21. Kanas N. Group therapy with schizophrenic and bipolar patients. In: Schermer VL, Pines M, editors. Group psychotherapy of the psychoses: concepts, interventions and contexts. London, UK: Jessica Kingsley; 1999. p 129-47. 22. Levine J, Borak Y, Granek I. Cognitive group therapy for paranoid schizophrenics: applying cognitive dissonance. Journal of Cognitive Psychotherapy 1998;12(1):3-12. 23. Schermer V L, Pines M, editors. Group psychotherapy of the psychoses: concepts, interventions and contexts. London, UK: Jessica Kingsley; 1999. 24. Smith J. Five questions about group therapy in long-term schizophrenia. Group Analysis 1999;32(4):515-24. 25. White JR, Freeman AS. Cognitive-behavioral group therapy for specific problems and populations. Washington, DC: American Psychological Association; 2000. 26. Wykes T, Parr A, Landau S. Group treatment of auditory hallucinations. Br J Psychiatry 1999;175:180-5. 27. Yalom ID. In-patient group psychotherapy. New York: Basic Books; 1983. 28. Coupand K, Macdougall V, Davis E. With one voice: guidelines for hearing voices groups in clinical settings [serial on the Internet]. New Therapist 2004 Jul-Aug;32:18-24 [cited 2005 May 7]. Available from: www.newtherapist.com/32groups.html. 29. Anthony WA. Recovery from mental illness: the guiding vision of the mental health service in the 1990s. Psychosocial Rehabilitation Journal 1993;16(4):11-23. 30. Reid KE. Social work practice with groups: a clinical perspective. Pacific Grove, CA: Thomson Brooks/Cole; 1991. 31. Northern H. Social work with groups. 2nd ed. New York: Columbia University Press; 1988. 32. McLean C, White C, editors. Speaking out ... and being heard. 4th ed. Adelaide, South Australia: Dulwich Centre Publications; 1996. 33. White M. The externalizing of the problem and the re-authoring of lives and relationships. In: M. White, 1989. Selected papers. Adelaide, South Australia: Dulwich Centre Publications; 1989. 34. White M. The process of questioning: a therapy of literary merit. In M. White, 1989. Selected papers. Adelaide, South Australia: Dulwich Centre Publications; 1989. 35. BASIS-32 Survey [monograph on the Internet]. Belmont (MA): McLean Hospital, ©2002-07 [cited 2005 May 7]. Available from: www.basis-32.org/webscore/agreement.html. 36. www.outcomes-trust.org/instruments.htm#basis [homepage on the Internet]. Waltham (MA): Medical Outcomes Trust ©2006 [cited 2007 Jun 26]. Available from: www.outcomes-trust.org/instruments.htm#basis (click on BASIS-32). 37. Eisen SV, Normand SL, Belanger AJ, Spiro A, Esch D. The Revised Behavior and Symptom Identification Scale (BASIS-R): reliability and validity. Med Care 2004 Dec;42(12):1230-41. 38. Bohart AC, Tallman K. How clients make therapy work: the process of active self-healing. Washington, DC: American Psychological Association; 1999. |
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