Needs and Background
The sequelae of adolescent sexual activity, pregnancy, childbearing,
suicide, and substance abuse are very costly social, economic, and health
problems, and there is now a real impetus in Kaiser Permanente to address
these problems in a cost- and time-effective manner. Many programs have
tried to identify high-risk adolescents, to provide health education
to prevent behaviors with poor outcomes, and to promote professional
intervention, but most have had only limited success.1
Studies suggest that most adolescents rarely seek care from their usual
physician in areas of sexuality, substance abuse, and emotional upset.2
Therefore, teenagers may fail to realize they need health education
and services.3 The sensitive nature
of the issues creates discomfort, avoidance, and confidentiality problems
and presents numerous barriers to effective preventive health measures
now required by HEDIS and various accreditation agencies. This requires
time-consuming clinical encounters, and many providers experience discomfort
when engaging these problem areas.4,5,6
This discomfort is partly due to the nature of the issues, lack of prearranged
referrals and resources, and the unpredictable time required, which
affects the routine clinic schedule. A comprehensive health history
requires a complete behavioral history.3,7 A face-to-face interview may yield biased responses
and may involve interpersonal barriers such as guilt, mistrust, embarrassment,
and confidentiality, which can prevent the clinician from delivering
important health risk reduction messages. The use of a pre-interview
written questionnaire obviates some barriers and expedites the face-to-face
clinical interview by obtaining a more accurate behavioral health history.8,9
Description of Clinical Tool
The individualized attention of a personal interview and
counseling can be simulated through the use of an expert, interactive
multimedia computer; it controls feedback so that branching and decision-making
depend on the patient's responses. It also eliminates other interpersonal
barriers such as avoidance, denial, discomfort, and confidentiality
issues. Because most youths are familiar and comfortable with computers,
the computer's ability to respond with selective, personalized feedback
creates intense attraction.10,11 Computers
have been used very effectively to take medical and behavioral histories.12,13,14,15
Patients have indicated that they prefer interactive computer programs
to human interviewing or to human advice on sensitive topics.16,17
Adolescents readily reveal sensitive information to a
computer.18 My previously reported study19
compared 265 anonymous computer users and a matched group of 294 users
who were pre-directed to share a printout of sensitive questions with
a clinician. Both groups showed comparable sensitivity that was greater
than that of a matched written questionnaire group of 240, suggesting
the superiority of the computer over a written questionnaire for detecting
sensitive issues. I found that the computer is perceived by teenagers
as anonymous and nonjudgmental, and adolescents are more likely to share
personal information with a computer if they know they will get immediate,
individualized feedback from the computer.
The "Youth Health Provider" multimedia program
was developed and evaluated as an expert tool to assist in solving limitations
in biosocial screening and adolescent evaluation and to provide multiple
levels of interactive health education. An interactive multimedia presentation
followed by printed information together provide specific health education,
directed medical advice, and referrals. These referrals to health resources
empower Kaiser Permanente patients and facilitate professional interventions.
Additionally, the computer conserves professional time when the clinician
is given a problem-list printout from the teenager's assessment.
Design of Interactive Multimedia Computer
Program
A practical health screening and educational tool requires an interactive
multimedia computer program with internal consistency, built-in clinical
logic validations, and reliable educational feedback formulations acceptable
to patients. The program is designed to privately take a comprehensive
medical and behavioral health history covering all the preventive health
issues required by the AMA Guidelines for Adolescent Preventive Services.20
The software was developed and revised after numerous pilot tests and
checks for operational validity and reliability. The program accomplishes
a health interview and evaluation in the history-taking format a clinician
would follow, and it uses complex logic checking to assess health behaviors
and provides feedback to the adolescent. The entire program is self-service,
requiring no supervision. The specific computerized procedures:
- obtain a thorough behavioral and health history
- identify and prioritize problem areas and health needs
- provide problem-specific health advice and local referrals
- give selective age-specific anticipatory guidance
- provide assessment response data for clinician's evaluation
- administer pertinent, succinct health education videos
- dispense specific printed take-home materials
Complete privacy while using the computer is strictly
enforced. The youth types his or her first name, and the computer addresses
him or her personally by name. For cultural appropriateness and to maximize
rapport, all video presentations show peers of the same race, culture,
and gender as the patient. The program opens with an introduction by
a youth "peer counselor" explaining the purpose of the program.
It emphasizes giving honest answers and repeatedly suggests that the
youth share printout information with the clinician.
Questions are spoken through headphones and are printed
onscreen, and each answer requires pressing only one button or touchscreen.
This interactive branching program takes a directed history based on
specific screening questions and on previous answers, logically proceeding
as would the physician. The interview usually takes about 15 minutes
to complete. Some teenagers may be asked only 50 minimum screening questions,
whereas others can branch to 350 possible questions based on responses
requiring more in-depth exploration. The program internally validates
certain responses for consistency and reconfirms crucial branch-point
questions, maximizing specificity of interview. The program database
will permanently keep an encrypted record of the user's responses, which
is retrieved at later interviews by identifier password or Kaiser Permanente
medical record number. Thus, subsequent questioning will not ask the
forever-positive questions again (i.e.: ever had sex, high blood pressure,
etc.), and this way an intelligent follow-up of previously identified
issues can be accomplished. The software was designed to operate on
externally fed questions from a text database for easy modification
and customization.
Educational Feedback
After interview assessment, the computer gives the adolescent different
forms of personalized information as a multimedia presentation followed
by a printout. The presentation
(consisting of up to 60 adolescent health education topics) may deliver
specific subsegments of a topic only on need. Identified health problems
and needs are prioritized according to risk determined and are presented
with highest priority first. In order to easily modify and customize
the presentations on short notice or respond to rising health concerns,
the presentation driver was designed to operate on external audio and
video files which can be amended, deleted, or inserted as needed. To
make the program compatible with any Kaiser Permanente clinic patient-flow
pattern, the total time spent on the interactive visual portion may
be determined by the teenager or clinician, and the patient may return
later to continue the presentation where he or she stopped. All interview
questions, anticipatory guidance, and health education are presented
in a way that is specific for the gender, race, and culture of the user.
Printed medical advice includes specific health observations
and recommendations. The printed handouts are written versions of the
scripts of the multimedia presentations. To save printer paper and time
in busy clinic settings, the patient may be directed by the computer
to take preprinted handouts by number from a rack next to the
computer. Medical referrals to resources for specific services are made
through selectively printed local telephone numbers or through
Kaiser Permanente resource numbers as well as national toll-free 800-numbers.
There are also specific referrals to call and hear prerecorded telephone
health messages such as Kaiser Permanente HealthPhone (1-800-33-ASK-ME)
on relevant health topics. Referrals are also made to appropriate health
education computer games and to computer-assisted instruction programs.
For example, the "Babygame" addresses parenting desires and
needs, and the "Romance" game covers sexual survival skills,
information on abstinence, responsible sexual decision-
making, and contraception.21
The computer completes the interview, prints feedback,
dispenses specific handouts, then administers relevant audio-visual
selections from its library of high-impact health education multimedia
presentations. Assessment data for the clinician are provided as a printed
problem list or can be uploaded to an electronic medical record. The
patient may offer this tear-off data voluntarily, which facilitates
accuracy of the history and expedites the clinical evaluation.
Results
Subjects
I compared 3,327 adolescents at the Kaiser Permanente Honolulu clinic
with 288 adolescents in detention, in runaway shelters, and in a youth
correction facility. The age range was 13 to 19 years (mean age of 15.5
years), and half were female. Anonymous response data were saved on
disk. There were only about 3% refusals due either to time constraints
or to "computer shyness."
Methods
Four different evaluation approaches were used to study the following
topics: a) educational evaluation to compare computerized multimedia
vs. printed material, b) user responses to the computerized interview,
c) impact of the program and printout on individual adolescents, and
d) risk profiles compared for the two adolescent populations: clinic
and detention. This information is used to determine how the computer
can provide more comprehensive risk profiles than conventional medical
evaluations, to externally validate computer-collected data with other
surveys, and to look at high-risk health needs of both groups.
Findings
Computerized multimedia vs. printed material
I compared two different educational media by measuring improvements
in users' knowledge about smoking and sex. Test instruments based on
the content of each presentation script were developed to assess impact
of two different automated interventions. For a random sample of 595
anonymous, matched clinic subjects, one third had audio-visual presentations
administered by computer; the second group watched no presentations
but were given handouts identical to the scripts; and the last (control)
group was made up of computer users without handouts or presentations.
Measurements of six knowledge items about smoking and sex were separately
made for the control group and two experimental groups. Media users
increased their knowledge of oral contraceptives, HIV testing, Depo-Provera,
cigarette costs, smoker health care costs, and nonsmoker longevity.
The 215 computer/presentation users had 57% more knowledge improvements
than the 194 computer/handout users; both experimental groups showed
significantly greater knowledge gains (p<0.05) than the control group
of 186.
Reactions to computer interview and program feedback
The interview asked for a self-report of their opinion about their computer
interaction. The computer asked the interview assessment questions at
the end of each health screening interview, before any feedback.
Therefore, these responses reflect only the youths being questioned
by the computer, rather than any reaction to the presentation or printout.
The computer asked: "How honest and accurate have you been with
me on these questions?" 84.9% of the teenagers responded that they
were totally honest and accurate, 8.7% responded that they were not
completely honest, 5.0% said that they couldn't understand some of it,
and 1.4% indicated that they were "pretty inaccurate." Only
0.9% more teenagers in detention said they could not understand some
of the program, but none said they were "pretty inaccurate."
When all teenagers were asked how they would prefer to be interviewed,
the computer was preferred by 88.6%, 5.8% preferred a face-to-face personal
interview, and 5.6% preferred a questionnaire interview. When asked
if it is easier to talk honestly about these kinds of questions with
a person or a computer, 84.3% picked the computer.
Impact of the program and printout
A separate subgroup of 200 subjects who had previously used the computer
and had received feedback was given surveys by nurses and asked to complete
them anonymously; 97.5% responded that they had told the computer their
"real and true" information, and 96.2% felt that the computer
"asked good questions." There were 95% who reported that they
did read the printout, 94% said that feedback advice made good sense
to them, and 97% felt the content applied to them. Only 44% said they
spontaneously shared the printout with a doctor, nurse, or adult. When
asked if they would like to use the computer again sometime, 87% responded
affirmatively.
Computer-generated risk profiles developed from user
responses
I evaluated how the computer can capture sensitive interview data not
normally shared with health providers and how the interaction between
provider and patient might improve because of disclosed information
which would otherwise be unknown to the provider. Table 1 is a summary.
Twenty-two percent of all teenagers used marijuana at
least monthly; 15% of males and 10% of females used it weekly or more
frequently. No alcohol use was found in 56% of teenagers; however, 28%
admitted to drinking up to twice a month, and 17% drank at least every
weekend.
The computer interview found that 14% of all teenagers
had previously attempted suicide (9.8% of males, 17.8% of females).
There were positive statistical associations (all p < 0.001) between
drug use and other personal issues: school problems; arguments, fights,
or misunderstandings with friends, parents, or others; worries, pressure,
or stress; problems at home with parents or with other family members;
previous suicide attempts; and sexual abuse.
Forty-three percent of teens were sexually experienced.
The age of initiation of sexual intercourse is shown in Table 2. Sexually
experienced teens were asked frequency of any kind of contraceptive
use: 31% always, 23% sometimes, and 46% never. I found 34% of sexually
experienced males and 29% of such females felt that birth control pills
were unsafe. There were 11.6% of sexually experienced girls who wondered
if they had something wrong with them so they could not get pregnant,
and 41% of these girls were having intercourse more than once every
two weeks. As many as 4.7% of males and 10.5% of females said they had
a recent genital discharge or dysuria. Only 24% of males wanted information
or pamphlets on birth control, whereas 40% of females wanted this information.
 |
For female teenagers, 16.1% were determined by the computer
to be at risk for pregnancy at the time of interview. They were then
assessed for other behaviors: Alcohol use on a regular basis was associated
with twice the chance of pregnancy (p < 0.001). A girl using any
marijuana had three times more chance of pregnancy than nonusers (p
< 0.001). Recreational drug use was associated with more than twice
the chance of pregnancy (p < 0.001). Of sexually experienced females,
39% were possibly pregnant. Only 57% of sexually experienced females
had ever had a pelvic exam. Reported pregnancy (or its possibility)
was combined with other responses such as drug and alcohol use and other
high-risk behaviors to determine some of the educational feedback appropriate
for a given user.
The computer interview found that 14.5% of girls and 4.8%
of boys had been sexually abused. The mean age at first occurrence was
10 years old. Sexually abused teenagers (n=407) had significantly more
alcohol and marijuana abuse (26% vs. 13%; p<.001), and other substance
abuse (78% vs. 10%; p<.001). They were four times more likely to
have attempted suicide (41%) than those who were not abused (10%). In
one clinic subgroup, the computer recorded sexual abuse for 47 males
and 170 females, and 53% of these males and 63% of these females shared
their printout with a clinician. All these 132 teenagers whose abuse
surfaced as a result of sharing the printout with a clinician had a
positive outcome. Counseling was provided, and 1 out of 8 required active
intervention such as reporting.
Detainees
The 288 teens in detention and runaway shelters were compared with those
in clinic. These highest-risk teenagers (often with low reading ability)
were quite capable of engaging the interview program reliably and with
valid, consistent results, yet it took them 50% longer to complete when
the computer did not read the questions aloud. There was no difference
in reported honesty, and detainees preferred a computer over a personal
interview just as nondetainees did but were even less willing to fill
out written questionnaires (3.1%) than nondetainees (5.9%). Comparing
the responses of detained teenagers to the others, substance abuse was
8 times more common, and recreational drug use was found in 40% of the
detainees (vs. 6.6% for nondetainees). Detainees had four times the
risk of suicide. Twice as many detainees (82% vs. 43%) were sexually
experienced, and twice as many female detainees (35% vs. 16%) were then
at risk for being pregnant when compared with nondetainees. The computer
also detected that 16% of males and 41% of females were sexually abused.
These data are consistent with known statistics for detainees.22,23
Observations and Kaiser Permanente Clinical
Experience
Each installation required dedicated space, integration into the clinical
setting, staff training on protocol, and designated staff to replenish
handouts and to turn on computers each morning. Smooth implementation
occurred when noninterference with patient flow was assured and when
preestablished resources were in place for referrals.
A champion at each site was important initially to promote
the program, but within six months after implementation, pediatricians
and nurse practitioners were routinely referring their teen patients
with suspected psychosocial or sexual problems to the computer for help
with assessment. With the computer, the Kaiser Permanente Adolescent
Consultation Clinic was able to greatly expedite assessments of complex
patients who were referred. This made it possible to increase by approximately
25-35% the number of patients that could be comprehensively evaluated.
A useful clinic protocol was initiated where the intake
nurse routinely asked every teenager to hand her the response printout
so she could give it to the physician before seeing the teenaged patient;
this was rarely a disclosure issue, with only about 1 in 40 adolescents
declining to share their printout. When the physician referred to printed
sensitive responses during interview, the teenagers' usual reaction
was acceptance of the need to open a discussion. Only 3 out of 3,327
teenagers asked if their answers were being recorded in the computer,
and the explanation of anonymous recording satisfied them.
Discussion
Automated health assessment combined with directed multimedia education
can promote optimal decision-making and quality health care to more
patients, can expedite accurate clinical assessment, and can provide
health education for good health choices. Such technology seems almost
critical for Kaiser Permanente as a time-efficient approach with a preventive
health emphasis. Most of the cost of implementing the program is incurred
at startup, but in the long term, automated health assessment may be
less expensive than retraining or hiring staff. The computer can facilitate
a realistic understanding of the consequences and outcomes of health
behaviors. It provides the opportunity to connect patients to their
caregivers and can measurably improve health education.
The global responses to the issues, when compared to known
norms, suggest accurate input to the computer. Because nearly all patients
read the printout, the necessary information is reaching each teenager
(96% said the printout was applicable to them). Only 44% spontaneously
shared their printout with a doctor, a nurse, or an adult, but nearly
all would do so when asked, which suggests that this automated method
provides a solution for addressing sensitive issues and breaks down
barriers to delivery of and receptivity to health messages. Patients
clearly preferred the computer over a questionnaire or personal interview.
The computer also enabled collection of statistical health
data for research or survey purposes. Medical record data links to and
from clinical office information systems allow transfer of patient data,
making the computer fully interfaceable with an electronic medical record.
With this reference database in place, intelligent interval assessment
and follow-up of prior evaluations allows patients to monitor their
health behaviors and consequences.
Multimedia health education offers visual presentation
with audio explanation, making information quickly and easily understandable.
Immediate feedback provides personal reinforcement of material and is
highly motivating. In the clinical setting, computerized interview appeared
to decrease anxiety associated with sensitive issues for both doctor
and patient. Using it to address these issues can demonstrate that the
physician is concerned about these aspects of the patient's life and
can facilitate more open communication. Physicians seemed to have found
computer-assisted video a reliable, time-saving health education tool,
as the face-to-face interview was comfortably primed with behavioral
health information. Estimates of physician interview time which can
be saved suggest that the computer is fast, economical, and cost-effective.24 Enthusiasm for use of technology was
not limited to patients and practitioners, but administrators saw it
as a marketing tool and as a progressive solution to educational needs.
Automated interview and health education almost eliminates avoidance,
mistrust, and discomfort in sharing sensitive problems. It enhances
clinicians' ability to promote quality health care to more patients.
Interactive computer-assisted identification of high-risk
behaviors and health needs is thorough, accurate, painless, easy, and
saves professional time. Such an evaluation combined with interactive
educational multimedia is credible and provides better retention. Computerized
health assessment with educational multimedia may be one of the most
promising interventions for health promotion and disease management
at Kaiser Permanente.
The author wishes to acknowledge support
of this program in part by an educational grant from March of Dimes
Chapter of the Pacific.
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